Learning to live with Huntington's disease: one family's story
Jessica Kingsley Publishers,
Huntington's Disease (HD) is a hereditary illness passed on via a defective gene. There is a fifty per cent chance of inheriting it from a parent and there is yet no cure. Learning to Live with Huntington's Disease is one family's poignant story of coping with the symptoms, the diagnosis and the effects of HD. This book presents the struggles and strengths of the whole family when one member loses their future to a terminal illness. Told by the sufferer and other significant family members, the individuals describe the burden of watching yourself and others for symptoms of HD, including involuntary movements, depression, clumsiness, weight loss, slurred speech and sometimes violent tendencies. The family recounts the challenge to remain united and describes how they approached issues such as whether or not to be tested for HD, how much information to disclose to relatives, whether to have children or not and guilt if one sibling inherits the illness and one does not. Both honest and positive, the author stresses the importance of re-inventing yourself and your present, prioritising relationships and retaining a sense of humour.
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|Grouped Work ID||b7fcade1-c8aa-a6a0-b54e-dbbb14dc212c|
|full_title||learning to live with huntington s disease one familys story|
|author||Sulaiman, Sandy, 1959-|
|owning_library_arlington||Arlington Public Library Online, Aurora Hills Online, Central Online, Cherrydale Online, Columbia Pike Online, Connection Crystal City Online, Detention Center Online, Glencarlyn Online, Local History Online, Plaza Online, Shirlington Online, Westover Online|
|record_details||external_econtent:ils:.b13040145|eBook|eBook||English|Jessica Kingsley Publishers,|2007.|176 p. : ill. ; 24 cm.|
|scoping_details_arlington||external_econtent:ils:.b13040145||Available Online|Available Online|false|true|false|false|false|true|||||
|title_display||Learning to live with Huntington's disease one family's story|
|title_full||Learning to live with Huntington's disease [electronic resource] : one family's story / Sandy Sulaiman|
|title_short||Learning to live with Huntington's disease|
|title_sub||one family's story|