Learning to live with Huntington's disease: one family's story

Book Cover
Average Rating
Publisher:
Jessica Kingsley Publishers,
Pub. Date:
2007.
Language:
English
Description
Huntington's Disease (HD) is a hereditary illness passed on via a defective gene. There is a fifty per cent chance of inheriting it from a parent and there is yet no cure. Learning to Live with Huntington's Disease is one family's poignant story of coping with the symptoms, the diagnosis and the effects of HD. This book presents the struggles and strengths of the whole family when one member loses their future to a terminal illness. Told by the sufferer and other significant family members, the individuals describe the burden of watching yourself and others for symptoms of HD, including involuntary movements, depression, clumsiness, weight loss, slurred speech and sometimes violent tendencies. The family recounts the challenge to remain united and describes how they approached issues such as whether or not to be tested for HD, how much information to disclose to relatives, whether to have children or not and guilt if one sibling inherits the illness and one does not. Both honest and positive, the author stresses the importance of re-inventing yourself and your present, prioritising relationships and retaining a sense of humour.
More Details
Contributors:
ISBN:
9781435603059
Also in this Series
More Like This
Reviews from GoodReads
Loading GoodReads Reviews.
Staff View

Grouping Information

Grouped Work ID b7fcade1-c8aa-a6a0-b54e-dbbb14dc212c
full_title learning to live with huntington s disease one familys story
author sulaiman sandy
grouping_category book
lastUpdate 2016-12-14 05:06:56AM

Solr Details

_version_ 1562650773997748224
accelerated_reader_interest_level
accelerated_reader_point_value 0
accelerated_reader_reading_level 0
author Sulaiman, Sandy, 1959-
author-letter Sulaiman, Sandy,
author2 NetLibrary, Inc.
author2-role NetLibrary, Inc.
author_additional Sandy Sulaiman.
author_display Sulaiman, Sandy
availability_toggle_arlington Available Now, Available Online, Entire Collection
callnumber-a RC394.H85
callnumber-first R - Medicine
callnumber-subject RC - Internal Medicine
days_since_added 3369
detailed_location_arlington EBSCOhost
display_description
econtent_protection_type_arlington external
econtent_source_arlington EBSCOhost
format_arlington eBook
format_boost 10
format_category_arlington eBook
grouping_category book
id b7fcade1-c8aa-a6a0-b54e-dbbb14dc212c
isbn 9781435603059
item_details external_econtent:ils:.b13040145||EBSCOhost|Online|eBook|eBook|1|false|true|EBSCOhost||http://www.netlibrary.com.library.access.arlingtonva.us/urlapi.asp?action=summary&v=1&bookid=202350||Available Online||q||
itype_arlington eCollection
language English
language_boost 10
language_boost_es 1
lexile_code
lexile_score -1
lib_boost_arlington 50
literary_form Other
literary_form_full Other
local_callnumber_arlington Online
local_callnumber_exact_arlington Online
local_callnumber_left_arlington Online
local_days_since_added_arlington 3369
num_holdings 0
oclc (OCoLC)175292183
owning_library_arlington Arlington Public Library Online, Aurora Hills Online, Central Online, Cherrydale Online, Columbia Pike Online, Connection Crystal City Online, Detention Center Online, Glencarlyn Online, Local History Online, Plaza Online, Shirlington Online, Westover Online
physical 176 p. : ill. ; 24 cm.
popularity 0
primary_isbn 9781435603059
publishDate 2007
publishDateSort 2007
publisher Jessica Kingsley Publishers,
rating 2.5
rating_facet oneStar, twoStar
record_details external_econtent:ils:.b13040145|eBook|eBook||English|Jessica Kingsley Publishers,|2007.|176 p. : ill. ; 24 cm.
recordtype grouped_work
scope_has_related_records a, arlington, c, d, g, h, o, p, s, u, v, w
scoping_details_arlington external_econtent:ils:.b13040145||Available Online|Available Online|false|true|false|false|false|true|||
table_of_contents The eye of the storm : Sandy's story -- The lucky one? : the sister's story -- Lost and found : the older son's story -- 'Is everyone alright?' : the younger son's story -- Eyes wide open : the daughter-in-law's story -- Mopping the ceiling : the husband's story -- A cruel inheritance : Brian's story -- Tips for living with Huntington's disease.
target_audience Other
target_audience_full Other
title Learning to live with Huntington's disease one family's story
title_display Learning to live with Huntington's disease one family's story
title_full Learning to live with Huntington's disease [electronic resource] : one family's story / Sandy Sulaiman
title_short Learning to live with Huntington's disease
title_sort learning to live with huntington's disease one family's story
title_sub one family's story