Catalog Search Results
Author
Publisher
Farrar Straus Giroux
Pub. Date
2021.
Language
English
Appears on list
Description
"A YA nonfiction story about Ariel and her twin sister's experience living with Crouzon Syndrome"--
At only eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome, a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive the disease. They endured numerous appearance-altering procedures as they grew up. Surgeons would break the bones in their heads and faces to make...
Author
Publisher
Roaring Brook Press
Pub. Date
[2019]
Language
English
Appears on list
Description
"With his signature acerbic wit and hilarious voice, twenty-something author, blogger, and entrepreneur Shane Burcaw is back with an essay collection about living a full life in a body that many people perceive as a tragedy. From anecdotes about first introductions where people patted him on the head instead of shaking his hand, to stories of passersby mistaking his able-bodied girlfriend for a nurse, Shane tackles awkward situations and assumptions...
Author
Publisher
Roaring Brook Press
Pub. Date
2014.
Language
English
Description
"With acerbic wit ... Shane Burcaw describes the challenges he faces as a twenty-one-year-old with spinal muscular atrophy. From awkward handshakes to having a girlfriend and everything in between, Shane handles his situation with humor and a 'you-only-live-once' perspective on life. While he does talk about everyday issues that are relatable to teens, he also offers an eye-opening perspective on what it is like to have a life-threatening disease"--...
Author
Publisher
Dutton Books
Pub. Date
©2016.
Language
English
Description
"I ask myself: how am I living still? And how I ask it depends on the day. All her life, Emily has felt different from other kids. Between therapist visits, sudden uncontrollable bursts of anger, and unexplained episodes of dizziness and loss of coordination, things have always felt not right. For years, her only escape was through the stories she'd craft about herself and the world around her. But it isn't until a near-fatal accident when she's twelve...
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