"The author's daughter was born with a very rare genetic syndrome and faced a daunting prognosis: she would be a fraction of normal size, have innumerable physical and mental difficulties and likely a shortened lifespan. Now, at age eight she is attending standard public school classes. This is the story of her family's journey"--

"One morning, Tophs, Taylor Harris's round-cheeked, lively twenty-two-month-old, wakes up listless and unresponsive. At the hospital, her maternal instincts are confirmed: something is wrong with her boy, and Taylor's life will never be the same. With every question the doctors answer about Tophs's increasingly troubling symptoms, more arise, and Taylor dives into the search for a diagnosis. This is a stirring and radiantly written examination of...