A life impossible: living with ALS : finding peace and wisdom within a fragile existence
Description
From NFL player Steve Gleason, a powerful, inspiring memoir of love, heartbreak, resilience, family, and remarkable triumph in the face of ALS"Gleason is a symbol of resilience, hope and optimism.” —The New York Times • "Steve Gleason has changed the world." –Roger Goodell, NFL Commissioner • "An extraordinary book...A Life Impossible will change the way people cope, think, and live." –Mike Lupica, co-author with James Patterson of 12 Months to LiveIn 2011, three years after leaving the NFL, Steve Gleason was diagnosed with ALS, a terminal disease that takes away the ability to move, talk, and breathe. Doctors gave him three years to live. He was thirty-three years old. As Steve says, he is now ten years past his expiration date.His memoir is the chronicle of a remarkable life, one filled with optimism and joy, despite the trauma and pain and despair he has experienced. Writing using eye-tracking technology, Gleason covers his pre-ALS life through the highs and lows of his NFL career with the New Orleans Saints, where he made one of the most memorable plays in Saints history, leading to a victory in the first post-Katrina home game, uplifting the city, making him a hero, and reflected in a nine-foot bronze statue outside the Superdome. Then came his heartbreaking diagnosis. Gleason lost all muscle function, he now uses Stephen Hawking-like technology to communicate, and breathes with the help of a ventilator. This book captures Gleason and his wife Michel’s unmatched resilience as they reinvent their lives, refuse to succumb to despair, and face his disease realistically and existentially.This unsparing portrait argues that a person's true strength does not reside solely in one’s body but also in the ability to face unfathomable adversity and still be able to love and treasure life.
More Details
Contributors
Duncan, Jeff author
ISBN
9780593536810
Table of Contents
From the Book - First edition.
Naked tears
Roots
Growth
Sports
Saints
Michel
Nola
Rebirth
165 Days
Failure
Disbelief
Into the unknown
the odyssey
Resolve
Losing control
Darkness
Compassion
Being the light
Gratitude and service
Fatherhood
The beauty of being broken.
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Published Reviews
Kirkus Book Review
A former NFL player chronicles the exhausting challenges of living with amyotrophic lateral sclerosis. Gleason's bluntly candid memoir opens with his care crew's grueling one- to two-hour routine to prepare him for the day ahead "because I can no longer move, talk, or breathe." In 2011, the author was diagnosed with ALS; defying the typical five-year life expectancy, he survives today, despite an emaciated, "withered" physical form and insurmountably "relentless and humiliating" physical limitations. Living in a wheelchair and on a ventilator for a decade, Gleason relies on the collaborative trust processes established within his team, communicating using eye-tracking technology, facial movements, and an ingenious rudimentary letter-board system. The author provides informative, conversational background on his youth in Spokane, Washington, raised by a "single-minded tough guy" father and a "quiet, cerebral" mother. Despite being born with a foot deformity, Gleason drew confidence from athletic success, which his father actively encouraged; the author's hard work and dedication earned him a scholarship to Washington State to play football and baseball. Flourishing in college, he joined the Indianapolis Colts in 2000 and then the New Orleans Saints. After dramatically depicting his career highlights, Gleason writes frankly about finding motivation now through his children, his faith, and the defiant spirit of Buddhist monk Thich Quang Duc, which "inspires and motivates me every morning." The author intimately portrays the evolution of his relationship with his wife and capably recounts his tireless efforts raising funds for and awareness of ALS. Though his post-football life has grown physically and emotionally arduous, Gleason takes nothing for granted and courageously exposes the raw details of his journey, which are persistently grim but also moving and hopeful for others dealing with disabilities. A sobering, inspirational sports memoir grounded in inner strength and resiliency. Copyright (c) Kirkus Reviews, used with permission.
Copyright (c) Kirkus Reviews, used with permission.
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